There is not much to report. Well, really there are a lot of things going on but it's more of the same. Doctors wanting this, nurses wanting that, this team and that team saying this and that. It gets pretty tiring; sometimes I just want to scream.

The best thing is that Sam is there and able to advocate for Malachi. This morning he was able to get everyone to agree that it might help him eat more if his tpn and fluids are turned down enough to actually make his body respond to things like a hunger response, and a need to hydrate. It seems like common sense to us. We will see how he does over today and tomorrow. There definitely seems to be a sense of movement in the right direction

Did I forget to mention that he started eating? It's even less than before, but it's something which is encouraging. He definitely does better with Daddy there to read his cues and encourage him in all the best ways. Yay for Daddy and Yay for a surgeon that is not so eager to cut to solve the problem as he is eager to solve it in the best way. If only Dr. Aiken could get 'the team' up to speed with his amazing ability to step back and see the situation. Oh well, they are certainly learning something with Malachi and a Daddy that is willing to speak up.

We'll get there, I feel that strongly. I am overcome with sadness and grief only when I want a time table, something concrete. I am reminded over and over through this process that the Lord is in charge and when I try to define things and take over it only creates unrest in my soul, which is not good for me, or my ability to do the best for my son.

Here's to staying centered and invested in the greater good. And here's to a husband that is willing to learn and do and be whatever is needed to bring the greatest good to his family. We are truly blessed. And most importantly here's to thoughts and prayers for eating like a champ, but only if it's the best thing for him. Of course our goal is to get him all the way fixed and if that means surgery again, well then so be it. Only time will tell. Here's hoping for the eating like a champ.